Building Better Practice Together

Bringing together research, professional expertise and lived experience to explore what works and improve outcomes for children and families.

Current Projects

Alongside publishing our own practice-based evidence, we work in partnership with universities, schools, families and professionals to strengthen the evidence base for feeding development, Paediatric Feeding Disorders (PFD), and inclusive food based education and learning.

Highlights

Paediatric Feeding Disorder (PFD) is often more complex than it first appears. This study provides new evidence about the conditions that commonly occur alongside PFD and the role of feeding skill development in assessment and diagnosis.

Key findings:

  • Feeding skill differences were the the most commonly observed feature of PFD, but are often under-recognised and under-reported.
  • Neurodevelopmental and gastrointestinal conditions were the most frequently identified co-occurring conditions.
  • Most children presented with multiple overlapping factors rather than a single cause, making diagnosis more complex.
  • The findings help improve understanding of how PFD can be distinguished from other feeding difficulties, supporting more accurate assessment and clinical decision-making.

Morris NR, Daw H, Bates L, Horniblow RD. Utilising the diagnostic criteria of paediatric feeding disorder: updated findings from a population-based cohort study. J Pediatr Gastroenterol Nutr. 2026; 82: 33-41. 

The Paediatric Feeding Disorder (PFD) Community of Participation 2025

More than 100 professionals, researchers, families, and organisations worked together across an eight-month process to develop a shared vision for improving support for children with PFD.

There was strong agreement that children with feeding difficulties need:

  • Clearer and more consistent diagnosis;
  • Earlier identification and intervention;
  • Access to multidisciplinary support;
  • Better trained workforces across health, education, and community settings;
  • Improved access to services regardless of where they live;
  • Greater recognition of family and lived experience in decision-making;
  • More research and better data to inform practice and policy.

Presented at the EACD Conference 2026 in Dublin, the outcome was a national Position Paper and recommendations to support wider recognition of PFD and improve care for children and families.

Improving Outcomes for Children with Paediatric Feeding Disorder

In partnership with researchers at University College London (UCL), we are conducting two practice-based research projects examining outcomes from a specialist family-centred transdisciplinary feeding service. 

These studies explore how targeted intervention can support children and young people with Paediatric Feeding Disorder across the medical, nutritional, feeding-skill and psychosocial domains.

The first study examines feeding-skill development and functional outcomes following intervention, while the second focuses on psychosocial outcomes, participation, and family-centred goal attainment. 

Both studies are currently in press and contribute to the emerging evidence base for transdisciplinary approaches to PFD intervention.

Evaluating the Eating as Learning (EaL) Curriculum

The Foundation is undertaking ongoing practice-based research into the effectiveness of the Eating as Learning (EaL) Framework and Curriculum in primary special schools.

This work examines how practical, inclusive food education can support feeding development, participation, emotional regulation, self-help skills, social interaction and confidence around food. Early findings from participating schools suggest positive impacts for pupils, staff and families, alongside increased confidence among school teams supporting children with feeding differences.

Research in Development

We are actively seeking partnerships with schools, universities, healthcare professionals, local authorities, and families to expand the evidence base for feeding, education, and development. Through collaborative research, we aim to create practical solutions that improve outcomes for children across the UK.

If you are interested in collaborating on a research project, get in touch.

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Working With Partner Organisations

The Foundation regularly works alongside other charities and community organisations to ensure families can access relevant support and opportunities to get involved.

Examples include:

Positive About Down Syndrome (PADS)

The Foundation worked with PADS to develop a parent webinar exploring feeding development and eating challenges experienced by some children with Down syndrome.

Autism West Midlands

Through workshops and learning events, families have been able to explore topics relating to feeding differences, participation and neurodevelopment.

Worcestershire Parent Carer Forum

Partnership work with Worcestershire Parent Carer Forum has provided opportunities to hear family perspectives, support local engagement activities and strengthen conversations around feeding development, SEND and inclusion.

Interested in becoming a partner organisation?